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author: Brown, Ian
an Brown’s son Walker is one of only about 300 people worldwide diagnosed with cardiofaciocutaneous (CFC) syndrome—an extremely rare genetic mutation that results in unusual facial appearance, the inability to speak, and a compulsion to hit himself constantly. At age thirteen, he is mentally and developmentally between one and three years old and will need constant care for the rest of his life. Brown travels the globe, meeting with genetic scientists and neurologists as well as parents, to solve the questions Walker’s doctors can’t answer. In his journey, he offers an insightful critique of society’s assumptions about the disabled, and he discovers a connected community of families living with this illness. As Brown gradually lets go of his self-blame and hope for a cure, he learns to accept the Walker he loves, just as he is.
Machiavelli praised his military genius. European royalty sought out his secret elixir against poison. His life inspired Mozart's first opera, while for centuries poets and playwrights recited bloody, romantic tales of his victories, defeats, intrigues, concubines, and mysterious death. But until now no modern historian has recounted the ...
Aaron and Stella Alterra had been married for more than sixty years when Aaron began to notice puzzling lapses in his wife’s memory. Innocuous at first, they became more severe and more alarming. After a series of appointments and tests, the Alterras were informed that Stella was one of the more than 4.5 million Americans with Alzheimer’s...
Michael Stolowitzky, the only son of a wealthy Jewish family in Poland, was just three years old when war broke out and the family lost everything. His father, desperate to settle his business affairs, traveled to France, leaving Michael in the care of his mother and Gertruda Bablinska, the family's devoted Catholic nanny. When Michael's ...
When his father was given a diagnosis of terminal cancer, Winnipeg broadcaster and musician Wab Kinew decided to spend a year reconnecting with the accomplished but distant aboriginal man who’d raised him. “The Reason You Walk” spans that 2012 year, chronicling painful moments in the past and celebrating renewed hopes and dreams for the f...
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